Pain Management, First Appointment!, Monday 9th November '09
| · ADR Support UK Guidelines · Portal |
 Help
 Search
 Members
 Calendar
|
| Welcome Guest ( Log In | Register ) | Resend Validation Email |
   |
Pain Management, First Appointment!, Monday 9th November '09| alyssa.star |
 Posted: Nov 7 2009, 12:24 PM
|
|
*Smile :-)  Group: Members Posts: 138 Member No.: 108 Joined: 8-August 08  |
Hiya,
 Just to let you all know that I have an appointment on Monday with Dr Jayne Gallagher at LBH on Monday! I don't really know what to expect to be honest...? In a lot of pain, I did too much yesterday and am now paying for it today! I know you guy's will be able to relate to that. Anywho, I'll probably be around today and tomorrow as I'm just resting! Love to all, Lyssie  x-x -------------------- Lyssie, 21y/o Diagnosed with Scoliosis aged 10, August '06 age 17, had spinal correction and fusion surgery by Mr Lam, now nicely fused T11-L3! Developed pain early '08 below fusion...
-June '08, Injections -June/July '09 Developed numbness -September '09 Further injections, unsucessful Attending pain management! Facet Joint Syndrome! |
  
|
| csutton1 |
Posted: Nov 7 2009, 01:25 PM
|
|
Full Member Group: Members Posts: 101 Member No.: 204 Joined: 5-September 09 |
Hi Lyssie
when i went to the pain clinic we did a lot of talking about how to cope with pain and how to pace yourself on bad days, it was not so much about medications but about coping skills, I don't know if that is what will be the case for you but I hope it is of benifit to you  xxx -------------------- Take Care
Carole 1986 X-Ray .DDD 1986 Physio 2005 Spinal rehab 2006 Scan abnormal Lumber Spine and Pelvis. Severe DDD at L4/5 and L5/S1. ref to Mr Mohammed @ Hope Hospital, more Physio 2007 Epidural 2007 told to lose 3 stone put on trial for freedom disc 2009 2nd scan rapid escalation L2/3, 3/4, 4/5, 5/1mr ross no longer able to operate, referred to mr Shackleton scan on 15/10/09 see Mr S 17/12/09 for results (long wait) |
|
|
| Alastair |
Posted: Nov 7 2009, 03:22 PM
|
|
Alastair Group: Admin Posts: 1,099 Member No.: 2 Joined: 24-February 07 |
I'm sure that Carole is quite right, a lot of it is about pacing and also there will be some conversations about the actual medications that you are taking.
Best, Alastair -------------------- Founder of this board 24th February 2007
ADR L5/S1 Surgery with Dr Zeegers 26th June2002 in Munich I live in West Yorkshire aged 73 now |
|
|
| ajj1001 |
Posted: Nov 7 2009, 04:32 PM
|
|
Advanced Member Group: Members Posts: 474 Member No.: 73 Joined: 13-January 08 |
It depends on which model of pain management that they are using. Most hospitals that have a specialist pain management team focus on a multi-disciplinary approach and looking at medication is only a small part of this. It is an avenue of treatment that is worth trying to see if you find any benefit from.
-------------------- 2009 Std meds - Gabapentin, MR Tramadol, Paracetemol, Laxatives
May PLG Fusion L5/S1 Charite in situ March Started appealing dismissal at work. April Dismissed 2008 June MRI showed additional prolapse L2/L3 Feb Caudal Epidural, on Gabapentin since due to pain. 2007 Deterioration L5/S1 Facet arthritis, Loss of disc height. 2004 Return to Work 2002 Aug started rehab March 2 level ADR Charite L4/5, L5/S1 2000 Broadbased disc prolapses L4/5, L5/S1 |
|
|
| alyssa.star |
Posted: Nov 7 2009, 06:35 PM
|
|
*Smile :-) Group: Members Posts: 138 Member No.: 108 Joined: 8-August 08 |
Hiya guys, thank you Carole, Alastair and Alison
The information you've given me is extremely helpful! So thank you, Mr Lam said they'll be able to sort out appropriate painkillers, As well as mainly helping the physical and psychological side of things, And coping strategies, groups, etc. I've been so busy talking about myself I haven't even asked how anyone else is!? Lots of love and hugs, Lyssie -------------------- Lyssie, 21y/o Diagnosed with Scoliosis aged 10, August '06 age 17, had spinal correction and fusion surgery by Mr Lam, now nicely fused T11-L3! Developed pain early '08 below fusion...
-June '08, Injections -June/July '09 Developed numbness -September '09 Further injections, unsucessful Attending pain management! Facet Joint Syndrome! |
|
|
| csutton1 |
Posted: Nov 9 2009, 09:49 AM
|
|
Full Member Group: Members Posts: 101 Member No.: 204 Joined: 5-September 09 |
Hi Lyssie
I am plodding along as I always do. going back to doctor on thursday (if I can get an appointment) as the problems with my neck are now stopping me from getting any sleep, I am used to not sleeping because of my lower back pain but this is so irratating it is tingling all night and my arm feels like a dead weight so can not get comfy. but I will survive. dont like taking Zopiclone. Hope your well this cold sunny morning. no accidents over the weekend. I still think of wrapping you in cotten wool to keep you safe. lol xx -------------------- Take Care
Carole 1986 X-Ray .DDD 1986 Physio 2005 Spinal rehab 2006 Scan abnormal Lumber Spine and Pelvis. Severe DDD at L4/5 and L5/S1. ref to Mr Mohammed @ Hope Hospital, more Physio 2007 Epidural 2007 told to lose 3 stone put on trial for freedom disc 2009 2nd scan rapid escalation L2/3, 3/4, 4/5, 5/1mr ross no longer able to operate, referred to mr Shackleton scan on 15/10/09 see Mr S 17/12/09 for results (long wait) |
|
|
| alyssa.star |
Posted: Nov 9 2009, 10:07 PM
|
|
*Smile :-) Group: Members Posts: 138 Member No.: 108 Joined: 8-August 08 |
Hi Carole, I hope the Dr appointment goes well and I hope you're able to actually get an appointent too! That's not pleasent that your neck isn't letting you sleep
 I didn't like taking Zopiclone either, it gave me nasty side effects like metal taste in my mouth, dizzyness and other things. You have enough lower back problems as it is and all you need is neck problems! *gentle hugs*It was soo cold this morning (so wrapping me up in cotton wool would go down a treat lol), which actually brings be onto my appointment (I'm in agony from trecking it to and from London  )The appointment was at 11:30 and the Dr was SO lovely, she's referring me for 2 things locally - pain specialist physiotherapy, and pain specialist psychologist for CBT. And has also changed my meds around a bit: Amitripyline changes into Duloxitene and add BuTrans patches plus normal Tramadol as I take it I'm still allowed to take, and Paracetamol, she said that she recons the slow release voltarol that I take wouldn't really take any affect on me as my pain seems to be very nerve type pain. She wants to see me again in about 2 weeks, and I am very happy with that and the appointment Rest for me now and GP in the morning at 9:20 to get my new meds prescribed and talk about my urine problems! *Lyssie takes a deep breath - siiigh* So tired, early night tonight  Love Lyssie x -------------------- Lyssie, 21y/o Diagnosed with Scoliosis aged 10, August '06 age 17, had spinal correction and fusion surgery by Mr Lam, now nicely fused T11-L3! Developed pain early '08 below fusion...
-June '08, Injections -June/July '09 Developed numbness -September '09 Further injections, unsucessful Attending pain management! Facet Joint Syndrome! |
|
|
| ajj1001 |
Posted: Nov 10 2009, 08:07 AM
|
|
Advanced Member Group: Members Posts: 474 Member No.: 73 Joined: 13-January 08 |
That sounds like a really good set of meds and referrals for a way forward through this pain. Hope all goes well with gp today.
-------------------- 2009 Std meds - Gabapentin, MR Tramadol, Paracetemol, Laxatives
May PLG Fusion L5/S1 Charite in situ March Started appealing dismissal at work. April Dismissed 2008 June MRI showed additional prolapse L2/L3 Feb Caudal Epidural, on Gabapentin since due to pain. 2007 Deterioration L5/S1 Facet arthritis, Loss of disc height. 2004 Return to Work 2002 Aug started rehab March 2 level ADR Charite L4/5, L5/S1 2000 Broadbased disc prolapses L4/5, L5/S1 |
|
|
| alyssa.star |
Posted: Nov 11 2009, 10:38 AM
|
|
*Smile :-) Group: Members Posts: 138 Member No.: 108 Joined: 8-August 08 |
Hi Alison,
I have my patch on since yesterday Should *hopefully* start helping in a couple of days I think. I am so tired! Can't sleep again or I wont sleep tonight, lol. I have another appointment with Dr Gallagher on the 23rd of November, expecting a call from the secretary later today about the CBT and physiotherapy so I can ask my insurance etc.How are you? Lyssie xx -------------------- Lyssie, 21y/o Diagnosed with Scoliosis aged 10, August '06 age 17, had spinal correction and fusion surgery by Mr Lam, now nicely fused T11-L3! Developed pain early '08 below fusion...
-June '08, Injections -June/July '09 Developed numbness -September '09 Further injections, unsucessful Attending pain management! Facet Joint Syndrome! |
|
|
| ajj1001 |
Posted: Nov 11 2009, 05:08 PM
|
|
Advanced Member Group: Members Posts: 474 Member No.: 73 Joined: 13-January 08 |
Sure the patches will kick in soon. Just make sure you take/use what is prescribed whatever you feel like. I'm muddling along!
-------------------- 2009 Std meds - Gabapentin, MR Tramadol, Paracetemol, Laxatives
May PLG Fusion L5/S1 Charite in situ March Started appealing dismissal at work. April Dismissed 2008 June MRI showed additional prolapse L2/L3 Feb Caudal Epidural, on Gabapentin since due to pain. 2007 Deterioration L5/S1 Facet arthritis, Loss of disc height. 2004 Return to Work 2002 Aug started rehab March 2 level ADR Charite L4/5, L5/S1 2000 Broadbased disc prolapses L4/5, L5/S1 |
|
|
| Gilly |
Posted: Nov 15 2009, 04:15 PM
|
|
Advanced Member Group: Members Posts: 447 Member No.: 99 Joined: 1-July 08 |
Hope you get as much relief with the Brutrans patches as I have Lyssie. They have really kept me going over the past year. I have been unable to tolerate Tramadol and Cocodomol so these have been really good. They take a couple of days to kick in and make you feel a bit sick but that wears off, but when I change my patch I always do it at night so that I sleep off the sickly feeling rather than have it during the day. Hope things go well with the CBT and physio.
Take Care now Love Gilly xx Ps you may manage to get some sleep with the patches as they can make you a bit drowsy - hope so xx -------------------- 1990 MRI disc protrusion level4/5 fusion offered but
declined due to poor prognosis. Osteopathy, physio,traction,steroid injections epidurals all tried. 2006 Muscular-skeletal back building course. 2007 Mri disc protrusions Level 4/5 level5/S1. 2008 Discograms show annular tears and bulging. 2009 2 levelADR op 23rd April by Mr Shackleford cancelled due to anaemia.1st Oct and 15th cancelled. Now 29th |
|
| alyssa.star |
Posted: Nov 19 2009, 06:46 PM
|
|
*Smile :-) Group: Members Posts: 138 Member No.: 108 Joined: 8-August 08 |
Hiya guys,
 I am extremely drowsy and sleeping far too much which is then giving me headaches if I sleep too much. I'm setting my alarm for 8 but I just sleep right through and still waking up through the night too. Still in same amount of pain I'm afraid I'm seeing Dr Gallagher, my pain Dr on this Monday 23rd coming and this time my dad's coming to the appointment with me!I'm sorry I've not been on in a while! How is everyone? Love and hugs, Lyssie xx -------------------- Lyssie, 21y/o Diagnosed with Scoliosis aged 10, August '06 age 17, had spinal correction and fusion surgery by Mr Lam, now nicely fused T11-L3! Developed pain early '08 below fusion...
-June '08, Injections -June/July '09 Developed numbness -September '09 Further injections, unsucessful Attending pain management! Facet Joint Syndrome! |
|
|
| csutton1 |
Posted: Nov 20 2009, 08:11 AM
|
|
Full Member Group: Members Posts: 101 Member No.: 204 Joined: 5-September 09 |
Hi Lyssie. I am sorry the patches are not reducing your pain for you and I hope you get things sorted out on the 23rd its a good idear to take your dad as he may come up with questions you have not thought of. the
If I sleep longer than 4 hours I get headache to. take care of yourself. xxx -------------------- Take Care
Carole 1986 X-Ray .DDD 1986 Physio 2005 Spinal rehab 2006 Scan abnormal Lumber Spine and Pelvis. Severe DDD at L4/5 and L5/S1. ref to Mr Mohammed @ Hope Hospital, more Physio 2007 Epidural 2007 told to lose 3 stone put on trial for freedom disc 2009 2nd scan rapid escalation L2/3, 3/4, 4/5, 5/1mr ross no longer able to operate, referred to mr Shackleton scan on 15/10/09 see Mr S 17/12/09 for results (long wait) |
|
|
| ajj1001 |
Posted: Nov 24 2009, 04:56 PM
|
|
Advanced Member Group: Members Posts: 474 Member No.: 73 Joined: 13-January 08 |
How did your appt go? Hope you are ok. x
-------------------- 2009 Std meds - Gabapentin, MR Tramadol, Paracetemol, Laxatives
May PLG Fusion L5/S1 Charite in situ March Started appealing dismissal at work. April Dismissed 2008 June MRI showed additional prolapse L2/L3 Feb Caudal Epidural, on Gabapentin since due to pain. 2007 Deterioration L5/S1 Facet arthritis, Loss of disc height. 2004 Return to Work 2002 Aug started rehab March 2 level ADR Charite L4/5, L5/S1 2000 Broadbased disc prolapses L4/5, L5/S1 |
|
|
 |
|
