Title: My Update - Kind of a result
patriotspyke - November 14, 2011 10:10 AM (GMT)
Thouht I would pop on and say hi and also ask for some advice. Well just a quick update... around 2 years ago I had bad arm pain and neck pain in short I had a disc go at c5/6 and had adr around 1.5 years ago, around the same time my lower back started to hurt, I had scans, a disco and nerve root block and nothing showed up. well it all got worse around 7 months ago and my legs and hips started to hurt, my legs were heavy and I got a lot of muscle ache and cramps, my hips felt like they had a knive in them and popped / cracked a lot. I had a few cancelled appointments. Anyhow a few weeks ago I go an appointment through for facet injections in both sides of L5/S1.... 2 days after the injections I was almost pain free, before i had days where I could not walk more than 10 mins and could hardly wak up stairs. I am still almost pain free but my hips still crack a lot and at times I can not move my legs our as the hip joint feels like it is stuck, sometimes if I push on my leg it cracks and them my hip will rotate. Now my scan during the injections showed both sides are bad and on the left the space has gone... the radiologist said this is def the issue and will write to my surgeon.... A result after so long.... however I am concerned that this may not be the whole problem.. I find it hard to beleive the issue with the L5/S1 gap could cause my hips to hurt and crack and pop.... without doubt is it the cause of my lower back pain and leg cramps and pain... what do you think?
Alastair - November 14, 2011 11:50 AM (GMT)
I remember you talking about things cracking and popping right from day one, I wonder if some of this could be caused by a change in posture, you've got too much kyphosis and so too much lordosis following your surgery?
I wonder if there is a problem, if this is coming from your hips rather than your back? It's very unusual, although we all do get creaks and groans in our spines from time to time. I'd be interested to see what other cervical patients say with their experience
patriotspyke - November 14, 2011 12:07 PM (GMT)
its not the normal clicks and pops I get in most joints the hips are a very lund crunch and usually 2-3 crunches when i lift my leg up,
The person who did my injections said i will probably need a spacer put in to open up the gap which has gone. I did mention my hips and she said it can be a side effect but very rare it is linked... which is my fear that this is 2 seperate issues.
Alastair - November 14, 2011 12:13 PM (GMT)
Your lumbar discography was OK so you say , could this be a pelvic thing?
Where is the gap to fill?
What and where was the "Spacer" to go?
patriotspyke - November 14, 2011 03:50 PM (GMT)
ok, non tech... my L5/S1 they showed me on each side there was no space hence my pain and said I would need a spacer put in each side. That to me explains my back pain and radiating pain into the legs but not the hips issues!
Alastair - November 14, 2011 04:05 PM (GMT)
If there is no space between L5/S1, then you need an artificial disc putting in there maybe. I don't understand this without seeing the actual MRI scan or X Ray.
If what has happened at L5/S1 is what is called gas phenomena, then you've got bone rubbing bone and no disc there at all that is why the clicking sound happens
patriotspyke - November 15, 2011 11:23 AM (GMT)
perhaps my bad explaining, its L5?S1 and the gap on each side, not in between, not sure what the bones are called on each side
Alastair - November 15, 2011 01:18 PM (GMT)
patriotspyke - November 15, 2011 01:34 PM (GMT)
yes the facet joints, it is the gap which has gone on one side and almost gone on the other side
Alastair - November 15, 2011 03:41 PM (GMT)
Quite often injections can pacify facet joint irritations, also ADR can be a good substitute to keep facet joints in order. :P
They are very much an Enigma :angry:
I'm sure someone will have sorted out a plan B if the injections don't work
patriotspyke - December 7, 2011 02:17 PM (GMT)
Thought I would post a quick update, well not sure what happened... 3 days ago i woke up in agony.. could not stand at all and had 2 days of pain which made me shake, it felt like I had broke my back. Well im more pain free now as I have been put on buprenorphine patches.. feeling very spaced out but at least i can walk again. Feeling like I am on melt down waiting to hear back from my surgeon!
ajj1001 - December 7, 2011 03:14 PM (GMT)
Any ideas if you did anything to set it off? Sounds horrible.
alyssa.star - December 7, 2011 03:16 PM (GMT)
Gosh that sounds nasty, hope things settle soon!
patriotspyke - December 7, 2011 03:21 PM (GMT)
nothing at all, normal pain is around 5-6/10 sore back, legs and hips. woke up around 9/10 in agony.... ut I could feel the bones in the lower back rubbing and crunching against each other... the patch is working but I just feel drunk and out of it plus very tired. Hoping i wont be on these for long!
Alastair - December 7, 2011 04:28 PM (GMT)
It sounds to me as if you have "Gas Phenomena" which is where the disc is replaced by gas and this doesn`t support the spine and you rub bone on bone?
Have you got any copies of your MRI scans or reports of them?
patriotspyke - December 8, 2011 09:05 AM (GMT)
I dont have a copy, in short they used the scanner which gives a live view when they do the facet injections and on both sides the space had gone with the bones touching. Out of interest how do you get copies of scans, is there a formal process to get these from the hospital? I may have the chance to go via Bupa so geting scans may speed things up!
Alastair - December 8, 2011 04:11 PM (GMT)
If its the NHS you can request a copy on a CD or BUPA usually charge £10
Its all about money :angry:
patriotspyke - December 21, 2011 09:25 AM (GMT)
Well had a result since my last post, in short my employer offers BUPA cover which covers existing conditions. so I am booked into the Spire Bristol to see Mr Mike K.... and have my copy scans from the NHS on their way. Seeing mr Mike K on Jan 3rd
ajj1001 - December 21, 2011 10:07 AM (GMT)
That's good news, not long to wait either.
Alastair - December 21, 2011 11:58 AM (GMT)
It's a good start to the New Year :D
patriotspyke - December 21, 2011 01:06 PM (GMT)
I hope so, just hope I get the scans out of the NHS before my appointment so we can get a plan of action at the meeting
Lynda - December 21, 2011 01:24 PM (GMT)
Hi Patriotspyke, that's good news about your appointment and being covered by BUPA too.
If you're having problems getting copies of your mri images you can always contact Mr K's secretary and tell her you have an appointment soon and ask if she could she make sure the mri's from your NHS hospital are available for the appointment.
Double check to make sure they've arrived before you appointment though.
Good luck with all this, hope you get a diagnosis and treatment plan.
patriotspyke - December 21, 2011 02:12 PM (GMT)
Thanks, I have just paid for the scan copies and should have them in time!
Are consultants able to get scan copies from the NHS for private appointments? I though this would have breached the data protection act?
Alastair - December 21, 2011 02:19 PM (GMT)
Consultants contract between the NHS and the private sector so I would think if you mentioned it to your consultant they would look at your NHS scans, I'm sure they can ask for them also. I know the private hospitals have a link between them all and they can download your x-rays and scans no matter where they are. I've experienced this with the BUPA hospitals on many occasions.
PS if in doubt ask your consultant secretary or tell her that you have recent x-rays and scans at another hospital. If I had a pound for every person who turned up at a consultants and the x-rays and scans were not there I'd be a rich man :angry:
Hurtyback - December 22, 2011 04:16 PM (GMT)
It is really good to hear that you have an appointment lined up. Fingers crossed for you!
patriotspyke - January 3, 2012 10:35 AM (GMT)
got my scans but they dont look like the ones the radiologist showed me during the injections, the ones she showed me showed a clear issue with the Facet joint at L5/S1, perhaps just a different view?http://www.pinkbike.com/photo/7553117/http://www.pinkbike.com/photo/7553116/
patriotspyke - January 3, 2012 11:22 AM (GMT)
ajj1001, thank for the email... didnt even spot that!!!!!
Lynda - January 3, 2012 02:18 PM (GMT)
I'm pleased you got your scans in time for your appointment with the surgeon...is it Mr Katsimihas you see today? It will be interesting to know what is recommended for you and I look forward to your next update.
Please let us know information you gather such as which prosthesis he uses and how many surgeries he has undertaken....... Alastair may add him to the list of UK surgeons.
patriotspyke - January 3, 2012 02:38 PM (GMT)
will do, I am just hoping that my scans show what he needs to know, when I had the Facet Joint injections the radiologist injected in left and right and took images of both sides, she showed me both sides and pointed out on both side where the space had gone, but left side was a lot worse (very clear to see). The images I have received dont seem clear at all. It is Mr K, I have met him before regarding my C5/6 ADR I had, he diagnosed me but could not operate as he had to leave the country for personal issues, he is a very nice chap... Will update later hopefully with a plan of action. I will be very interested to see how things are though the Spire vs NHS timewise.....
patriotspyke - January 4, 2012 08:29 AM (GMT)
Well not a bad appointment looks like L5 s1 disc and also facet joints have issues, going back for an up to date mri today to get a clearer picture...
ajj1001 - January 4, 2012 09:09 AM (GMT)
Did he comment on what options there were for you as you have facet issues too?
patriotspyke - January 4, 2012 10:16 AM (GMT)
no I think he wanted an up to date scan before comitting... He was not sure if the pain is from the disc or the facet joints or both.... my guess is both as I have nerve pain down my legs, cramp in legs, pain in hips and back pain.
My last MRI was over a year ago so does not give a true picture.
The disc is herniated, and also has air inside... this with the facet joints I am not sure what they will do.. Also on my Xray they did yesterday I have scoliosis and it looks like the curve is worse then a scan I had 2 years ago.... not sure if this could be causing issues.
Cant wait to get a diagnosis and action
ajj1001 - January 4, 2012 10:56 AM (GMT)
it'll be good to know what he thinks, spondy & facet arthrosis can be contraindicating factors for ADR. even if the pain isn't coming from the facets then it needs consideration.
patriotspyke - January 4, 2012 02:41 PM (GMT)
Well managed to get my MRI through the spire today and have copies on CD, have to admit I cannot read them at all (unless I have a consultant looking over my shoulder)
patriotspyke - January 10, 2012 11:01 PM (GMT)
Had my follow up, in short still need more tests. I have osteoarthritis l5 s1 disc is severe and my facet joints are bad. Surgeon wants more nerve root blocks and more facet injections before making more decisions. In next Tuesday for the needles
Lynda - January 10, 2012 11:23 PM (GMT)
That's not too long to wait which is good ......although of course its not good that your lumbar spine is so bad. Hopefully the facet and nerve blocks will give you much relief and a plan for any further action can made.
Hurtyback - January 11, 2012 01:33 PM (GMT)
Here's hoping that the injections clarify things and make the way ahead more obvious.
patriotspyke - January 11, 2012 02:05 PM (GMT)
here is hoping, I have had nerve root and facet injecions before so not 100% clear why the need more but they are the ones with the answer so hopefully... had a bad experience last time with the nerve root injections as they hit my right nerve 3 times. Worst pain I have ever felt
Alastair - January 11, 2012 02:18 PM (GMT)
Having just had injections yesterday, I send you my best wishes for a much better experience than you had last time, it's not nice when things are so very very painful
Gilly - January 12, 2012 08:14 PM (GMT)
Hope you are feeling more comfortable after your injections and that they work for you in the future.